Thursday, November 23, 2017

333 + 229 Weeks

First off, we have about a thousand photos from this week.  The weather is just brilliant at the moment, so we are outside enjoying our beautiful beaches as much as possible.  Also, the new park at Mollymook finally opened, so we had a morning there with our homeschool buddies.  It is pretty great.  The kids loved it, and I think we will be there a fair bit.  The kids and their friends decided to play hide and seek there, and of course Arley and Winny went missing for what seemed like far too long.  They were hiding together in the toilets, which was, of course, the last place we looked after the panic had set in.  But apart from that, it was a great morning.  The pirate ship mists water, so the kids spent half their time there cooling off.

We also had Saturday night beach dinner.  We took Bella to Collers beach for a run while we ate.  The  weather was perfect and the sky was beautiful for photos, so that is why we have so many shots of the kids.  There was a bit of turmoil in our house before that, so it was really good that our dinner was peaceful.  Arley had a bad day on Saturday, and Carmie wasn't so hot either.  Arley was very aggressive again - all of those behaviours we thought we were pretty much done with.  That night a friend messaged me to tell me to have a look at his supplements.  I checked out his magnesium supplement, which I had just upped that day to a full cap (we had been working up from a quarter cap), and low and behold, there is something in it that reacts with excess glutamate.  So, I didn't give it to him the next day, or since for that matter, and he is back to normal.  He still is having immediate emotional regulation problems when things don't go his way, but no day-long aggression which was what we had on Saturday.  He actually had a big breakthrough last night.  For five months we have been working on him being able to pick up a pen and put it in his hand the right way.  Last night he sat with his dad to do some dot-to-dots, and he was able to pick up his marker and start drawing.  Then Jeff showed him how to colour in between the lines, and he went from pure scribble to neat colouring, right away!  And today, at every opportunity, he was 'practising his writing' - colouring in his dot-to-dot book.  He even chose to do this over computer time!  And despite the fact that we were out for three hours this morning, and then went to swimming, I still managed to get dinner cooked and the kitchen clean before Jeff got home.  So it cemented in me the fact that Arley has been my time-sucker all along!!  I got everything done while he sat at the kitchen counter and coloured.  I actually got to use the bathroom and brush my teeth on my own!  I felt free for the first time ever with him still at home with me.  Hoping this is how life is from now on!

I have also enlisted my mum to help with our baking, so that just helps us out SO much.  I dropped off a heap of ingredients and some recipes to her, and now we have a supply of baked goods, which is just huge.  With all the cooking I have to do these days, it really frees me up to do more with the kids and get things under control a little.

On Wednesday I took Arley up to his OT session while Carmie spent the day with Mum.  Arley's session went really well, and his OT got her very first 'hello' from him, and she said he is ready to work on handwriting, as he finally has the focus.  So much progress!

Today the kids and I decided to make a quick run to Dolphin Point for our morning tea.  But we stayed for three hours.  It was just too beautiful there.  We did running races, and drew in the sand, went exploring and marvelled at having the place to ourselves.  We really do live in the most amazing place in the world!

Saturday night beach dinner

























 At the new Mollymook park




 Proof!
 Dolphin Point today







 And then this happened tonight while I was getting dinner ready!  Huh??

Thursday, November 16, 2017

332 + 228 Weeks

It has been a busy week, and I feel like I am a hamster running in a treadmill.  The big news is that we got Arley's results back from his gut test, and he is low in a few bacteria, and high in some bacteria, and one that stimulates amine production, which causes a glutamate reaction...so, I got proof on paper!  But now of course I am worried about an amine intolerance, which is a different kettle of fish.  Anyway, we have about a million different supplements for Arley to take, and we are still cracking on this diet.  We are actually enjoying the new foods that we are eating, and while it is a lot of work, I am not missing too much about our old diet (except the convenience of it!).  We are eating a ton more vegetables, and this week, Arley helped me wash them all :)  He has been my little assistant in the kitchen.  He can still be quite aggressive and argumentative.  I took him with me to see our psychologist this week.  She hasn't seen him for about three months, and she said that he is a completely different boy!  He's making eye contact, he is much more verbal, no separation anxiety.  She said that his aggressiveness is because he is trying to hang on to old ways of dealing with us, because that is where his comfort zone is, so he's trying to pull us back to old ways of behaviour.  Knowing that it is easier to keep my cool around him.

Talking about separation anxiety, this week the kids and I took Bella for a walk, and we walked on the street that runs behind our house.  We heard someone call out hello, and it was this woman that I know because her son Elai was in swimming with Arley when he was really little.  I have seen her around town a lot since then, and it turns out that she has moved in to the house that backs on to our back yard, so they share our back fence.  Eli invited Arley inside to play, and when I said it was time for me to go, Arley just said, "OK, bye!"  And so I left him there for a play date!  He stayed for an hour, with people he doesn't even know!  Then they walked him home, and Elai came over to our house for a play in return.  I just couldn't believe it!  And so now Arley has another little neighbour friend.  So good!

This week the weather was amazing.  We had a park dinner on Saturday night, and the kids and Jeff played this monster game on the curly slide that just about gave me a heart attack, but the kids loved it.  We also had Nessy over for a play date on Sunday.  And then on Monday we met our friends on Mollymook beach for a beach play.  On Tuesday afternoon we had a play date over at the kids' friends Willow and Finn's house, and then on Wednesday we had Hannah over after school.  We had spent that day at therapy, and then lunch and a big two hour play on Merry Beach.  It was the most beautiful day, and we had the entire beach to ourselves, we did not see a single other person.  Pretty amazing.

So I am looking forward to a quieter week coming up.  It is actually supposed to rain, which is a good reason to stay indoors and be hermits!

My little kitchen hand.

 Saturday night park dinner.


















 Making magnesium muffins.
 Carmie and Ness.
 Mollymook beach

 Arley looking pretty at Finn's house
 The beautiful Merry Beach