I am exhausted tonight from horrible insomnia last night. It seems like this will be my eternal battle, and it's no fun.
It's been a good week though, because we have family in town! My sister Georgia and family has rented a large Air B&B here at Sapphire Beach, so both of my brothers have come up, as well as my parents. My parents came a day early, and we didn't tell the kids. They had literally been counting down the days, so when my parents knocked on the door, I told the kids I thought there was a package for them. They opened the door and saw Lolo and Dida, and they were so excited! Carmie started crying, it was too cute. (She has already started crying tonight at the thought of everyone leaving!). Lolo and Dida stayed with us for a night before heading up to the Air B&B. It's been really great to have everyone here. My younger brother Jay has finally moved out of China and to Australia, so it's good to have him back. The weather has been pretty crap, but it's been ok because we are all hanging out together.
Arley hasn't had the best week. I think maybe it's because he is a bit overwhelmed with the change of routine? He's been having a lot of anxiety which leads to very angry outbursts, particularly when his meds have worn off. I'm not sure if we will be sticking with the Dex with him. We are trying to titrate up the kids' doses, but every time we do, they get severe insomnia, which isn't good. Our next visit to the paediatrician is in two weeks, which seems like ages to wait.
Arley is very happy that his Uncle Sting is in town. Today he asked him over for a play, just the two of them. My brother is an awesome sport and very happy to oblige. I'm glad, because Arley needed the boost this week. He had a therapy session on Tuesday, and at the same time I met with his new behaviour specialist. Today I met with the head OT to start a sensory profile on him. They are 'taking him to panel', which means they are presenting his case to all of their therapists on board and trying to figure out a plan for him. I am really glad we have this team, my hopes are high.
Carmie is so happy to have her family around. She just wants everyone she loves to be here, all the time. Yesterday we went to the sea pool at Sawtell and the family met us there, and she had a swim with her dad and Uncle Sting. Arley was too grumpy to go in the water, but he didn't cause too much drama. Carmie has been doing so much more 'table time' lately - it is lovely to see her able to be creative. The difference in her on her meds and off is like night and day. Today she sat and wrote fifteen lines, from her head, which is really a miracle. She also started (and finished!) drawing a landscape watercolour pencil painting, and coloured it in, which also surprised me. I tried her meds and felt kind of euphoric, but she feels normal, she is just able to concentrate.
Anyway, I am looking forward to the week ahead. Luckily it looks like the weather is turning and we will have sunshine next week, which is awesome. Bring on the family holiday. Let's just hope little Arley holds up!
Just after Lolo and Dida arrived
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