534 + 430 Weeks

I'm trying to think back to what we did this week, and it seems like we didn't do much at all, except for doctor's appointments and therapies.  Not much fun in that!  Although Arley is loving this therapy he is doing once a week here at the house.  It's called Launchpod and his mentor comes to the house and plays with him doing science-y stuff for two hours. They've signed him on for a six month contract, so it's great.  I just had Carmie's first meeting for her NDIS funding on Tuesday, so we should find out what kind of supports she is getting in a few weeks.  Hopefully we'll be starting up horse riding again, and Carmie can do Launchpod too.  They are also trying to put into her NDIS budget funding for us to get a carer to come take the kids out once a week.  I'm so thankful for NDIS, it really helps.

I took Carmie to the dietician on Tuesday to get help with her diet and have a chat about our family's diet as a whole.  It's pretty stressful knowing this is her life from now on, but she seems to be accepting of it.  I also had to go to the doctor again to get referrals for the kids to see a paediatrician here, because we have to transfer care from our old paed.  I dropped off the referrals today and made appointments, but we can't get in until May, and its $480 per kid!  OMG!  We will get $230 back on Medicare, but doesn't that seem outrageous?  In the meantime I'll be doing Telehealth appointments with their Coffs paediatrician.  I had one on Tuesday because we are trialling Arley on Ritalin again, starting tomorrow.  Keep your fingers crossed!

The weather has been up and down, hot one day, cool the next, and today has been rainy so we took the kids to the mall.  Jeffrey has been working.  He's not loving the new job - it is long hours of labour with no lunch break, so not great!  And it's only getting hotter.  He has to wear long chainsaw protection pants and longs sleeves, so I don't know how he's going to handle it.  Monday is going to be 33 degrees. :(

We went for a few walks and park plays this week.  I got the kids out feeding the swans on the lake (these are our only photos from this week), and we got up to the park.  I am trying to get Arley back on his bike, but his anxiety is sky high.  He hasn't ridden for over a year, and it's pretty much like he's learning to ride a two wheeler all over again.  Carmie hopped on her bike yesterday and promptly crashed, so that didn't help!

Not much else to say!  I have taken the week off working on Instagram for my business, as the harassment continues.  In the meantime I have been working on an NFT project with Georgia.  Check out www.theslothlounge.com to see what it's all about.