568 + 464 Weeks

Besides quite a few appointments, we didn't do much this week.  The weather has been rainy and cold, and Arley came down with a cold, then Carmie got it, and then Jeff.  Miraculously, I have stayed cold-free, which is a small miracle because usually I come down with things first and then am still sick once everyone else has recovered.  We had to cancel all mentor appointments this week, but Arley still went to his social skills group.  We also got to the library and to the mall, and today the rain stopped so the kids and I got outside and played hopscotch. Not a terribly exciting week! 

So we've had a lot of appointments this week.  I started seeing a dietician for Arley, and we have a plan going forward to improve his eating.  Basically I have to get 5-6 small meals into him a day, but they can be anything he wants to eat, so long as its 5-6 times a day.  He can eat ice cream or cakes if he wants all day.  She is trying to get him to find a love of food again, and to trigger his body into feeling hungry for three meals and three snacks. Once we get him eating more calories, then we are going to work on food chaining and getting his food to be more nutritious.  She has also put him on supplements.  This is all a relief to me, his eating has been very worrying.

I have just come back from taking Carmie to a developmental physio, and next month she will be seeing the physio once a week.  She has an uneven back (the physio thinks it's muscular rather than scoliosis), and low muscle tone, she fatigues easily and she can't sit upright for long periods, and she is hypermobile.  I knew there had to be a reason she can't sit at the table properly, but to see her back so crooked was a bit of a shock.

We are in the process of getting the kids a bunch of reports done with their various therapists, because we need more NDIS funding.  It has been a monumental effort coordinating this, and very eye-opening to see the reports and what the therapists have to say.  I'm trying to keep my spirits up, but we have a lot of work to do.  The only way is up!