I’m sitting in a cafe in Caloundra, with the most beautiful view. I’ve got an hour and a half to kill while Arley is at his support worker Rob’s house. This is my treat to myself this week. Carmie is at home with Jeffrey who has the day off work. Poor Carms woke up with a tummy ache - damn that Coeliac disease. We’ve had a pretty good week though. Arley had an appointment with his new paediatrician. She seems very nice as well as thorough. She has switched his meds from Concerta to Vyvanse in the hopes that his appetite increases. Yesterday was day one on the new med, and he was a little irritable and sleepy, but he said he felt more focused. I’m really hoping it helps with his appetite, as he’s very hard to feed.
I met with Arley’s psychologist yesterday and she has given me some more techniques that might help getting him out of the house. She also told me that she has a real soft spot for Arley. Jeff and I met with Arley’s behaviour specialist which is great, as he’s getting Jeff and me on the same page. He said Arley’s PDA (pathological demand avoidance) is off the charts, which means we have a lot of work ahead of us. We are trying to let a lot of things go and remove demands from Arley - we can only push him so far.
On Monday, Holly, the kids’ support worker, and I took the kids to a gem fossicking place. This was the highlight of our week. They have large areas full of rocks with polished tiger eye and agate and other ‘gems’ scattered through them. It was really fun, and the kids loved it. We are hoping that Holly will eventually be able to take Arley out places on his own, because he’s getting bored of the activities she does with him at home.
Carmie is continuing with her Sunday creative writing class, and now she has also joined a literature class on Sundays as well. She is writing a novella for the writing class (and it’s amazing!) and she has started writing a short story for a writing competition as well. It’s so good to see her choosing to do these activities and really enjoying them. It’s what homeschooling is all about!
And once again we had horse riding and Taekwon Do. Yesterday we had a home day and it was a little rough with some meanness and quite a few tears. It was just one of those days.
Some other good news is that Mum and Geoff sold their condo in Las Vegas this week - done and dusted! So they will soon start looking at buying a home up here and moving. We are looking forward to having family around, and the kids are beside themselves :)
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