Phew, it is SO hot! We had a busy morning, starting with a visit to a farm so the kids could pet and feed the animals. They loved it, particularly Arley. It was a different farm to last time, and I paid to have the session all to ourselves so that Arley didn't get overwhelmed and he could participate. He was very engaged. Both kids milked a goat, and fed the baby goats, along with alpacas, a cow, chickens, some ducks, and horses. Arley wants to go back every week, but I'm shooting for once a month. It was great - until it got too hot and we had to leave, but we were there for almost an hour, so that's a win! Afterwards Arley had his last session with his behaviour specialist while I took Carmie to her physio appointment. We skipped Taekwon Do this afternoon - it was just way too hot.
We've had a good week. On Monday the kids' support workers took them out, and I had three hours alone! That is the longest time I've had alone in the house in two and a half years! I didn't know what to do with myself! Their support workers took them to an indoor play centre called Rush Adventureland. The kids were very excited to go. Arley managed to play for about half an hour before he got on his iPad and shut out the world with his headphones. Carmie played longer, and then they all went out for ice cream. It was a successful first outing, and I'll get three hours to myself every Monday if all goes well.
Carmie had an assessment with Riding for the Disabled on Tuesday. She will be starting their Pony Club on Saturday, and it will run every other week. I hope she goes OK when the weather gets hotter. She's excited about it - we're hoping she makes some friends with a shared interest of horses.
Arley met his dietitian yesterday. I have only done phone appointments with her, but now we will be meeting monthly in her office. She had large containers filled with different snack foods, and Arley had to choose three and try them, and rate them from good to bad, with a couple of tastes of each food. He did really well trying the snack food and she was surprised. However she soon saw what we are up against when she tried to get him to touch a carrot with his finger. There was nothing that was going to make him! When we left she tried to give him the snack that he really enjoyed, and he wouldn't take it - he has zero interest in food. We have a plan going forward, but she said she thinks it's going to be a very long time before Arley will be eating more and better foods. It's very stressful when you have a kid who won't eat, and only eats snack foods when he does. We are waiting to get him in for a blood test at the hospital where they can sedate him with gas, but we seem to be waiting a very long time. Right now we are focusing on getting him to eat six times a day, and it can be anything at all. Such a challenge! It boggles my mind how our Coeliac kid is easier to feed!
Fingers crossed for another good week ahead!
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